Supporting families with Galactosemia
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Care Preparation Tools
Tools and resources for the care of
your children and loved ones
The journey through different life stages with Galactosemia can be overwhelming and confusing. These resources are designed to help you feel as prepared as possible throughout the journey. The Galactosemia diet instructions and the Galactosemia school guide have been developed to help make starting new school years or social activities simpler by providing important information to your child’s educators and caregivers. The Managing Galactosemia by life stage guide has been created to help you be prepared when consulting your metabolic geneticist.
More resources
Information about childhood development
The Centers for Disease Control and Prevention (CDC) is a trusted source that can help you identify the milestones children typically reach as they grow.
Professional resources
Resources to share with teachers, doctors, and other members of your healthcare team
For many families, the care community lifting up children and adults with Galactosemia includes teachers and healthcare providers from a variety of specialties. These resources can help everyone get on the same page.
